Summer Update

I haven’t given an update in awhile, so here goes.  I’m doing very well lately with my new pelvis.  Surgery was still a life saver for me.  This summer has been jam packed with activities and travelling with the kids because I CAN NOW!  I’m overjoyed to be able to function normal again, it’s the best feeling in the world.  I still can’t believe a little over a year ago I was bed ridden for 8 weeks and prior to that I was using a cane to get around.  I feel like I’ve climbed mountains to get where I’m at now, but so worth it in the end.

I do have bad back days, which is to be expected since I’m fused in the front of my pelvis.  My SI joint in my back is constantly acting up, but I have a routine at night with exercises to stretch and strengthen it and my husband has to literally line up my pelvis with a weird stretching move every night.  This seems to work for me for now.  I do think this is something I’ll probably have to live with for the rest of my life.  I’m learning to deal with it now, resting on the bad days is key.

I’m able to ride my bike again, not too much but here and there on good days.  Swimming is no trouble and I’ve even dabbled in some very short runs on my treadmill.  Pilates is definately a life saver for me, my back feels so much better after doing pilates.

Overall I’m doing AWESOME!  I just have to get my back to understand that it has a new pelvis to work with now.  I’m determined to avoid putting a screw in my back to stabilize the back of my pelvis too.  I think I can get thru this.

If you are reading this blog and searching for answers about your painful pregnancy and or post partum pelvic pain, please send me a message and I’ll email you privately.  Since this surgery is so rare, it certainly is not for everyone and it should be considered the last resort.  There is so little information out there on pubic symphysis fusion surgery, I’m really just trying to give a small glimmer of hope to those searching for sucessful surgery stories.  Here I am, a SUCCESS!!!

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8 thoughts on “Summer Update

  1. I’m so thankful for your blog and the latest update gives me hope! I had my surgery 11 weeks ago and am finally walking unassisted! I have a long way to go, but I’m so happy to have made it this far! Congratulations to you!

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  2. It looks like this may be in my future and I’m so thankful I found your blog. I’m waiting for the specialist to call me to set up an appointment to meet with me . I didn’t have any issues during my pregnancy it was after I had my daughter that my puboc bone stayed separated and that was 3 years ago . The latest xray shows that the separation is 5cm . My big question is did your doctor say if you can still have a child if you wanted too since you have the screws and plate down there ?

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    1. Hi Vanessa,
      My surgeon did not recommend having any more children, he felt pretty strong about this. There is another girl who recently had this surgery that I’ve been talking to and she said her doctor didn’t see an issue with having more children. Please email me if you have further questions and if you want I can put you in touch with this other girl. cyndi.roberts5@gmail.com

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  3. I was recently diagnosed with same diagnosis along with possible sports hernia. I am mostly likely going to have a fusion of the pubic symphasis and possibly SI joints. I’d love to chat with you but am not seeing how I message you. My email is Alioop12345@comcast.net
    Thanks,
    Ali Kramer

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  4. Thank you so much for this blog! I am in a similar situation- 6 years in, two surgeries, tons of physio/exercises but apparently there is still too much movement in the symphysis. I am going back to my doctor next week to discuss options and timelines. Thank you for sharing your success story. It’s incredible to hear you ran 5 km on sand- as someone else said- even walking on a beach is unimaginable at this point & lifting your beautiful children-congratulations again- I do know what a long road it is to enjoy those simple pleasures. Thanks again for sharing & best of luck to everyone in this group.

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